Hi! I'm new to the boards.
Here's a bit of background:
-double mastectomies 12/2005
-double
simultaneous hip replacements 08/2006
-right shoulder replacement 07/2008
-hypermobile joint disease (~Ehler's Danlos family)
-eczema and allergies gallore
...oh yeah, and I just turned 50! <insert
BIG grin here>
I
was
always dx with oa a few years ago and now i have one set of docs
telling me i have JUST oa and another set telling me i HAVE ra.
(They tell me I'm rare... lol) So we are off to see yet another
specialist at Barnes in St Louis. The latest rd thinks i might have
something in the Complement systems disorder/disease that involves an
immune disorder / blood disorder??? Reactive Arthritis maybe.....
I no longer can take/tolerate steriods -
so NO pred. I'm really just not sure what to think or feel at this
point. During the last appt with specialists
we discovered and confirmed arthritis in just
about all joints and also my cervical spine area (moderate with
narrowing).
I / we are hoping to find something that might "push" me into remission or at least slow the progression.
Any feedback, insights, things to ask the new docs, etc. would be appreciated.
Thanks! Looking forward to moving beyond this and finding life outside my illnesses!